Scleroderma, Sarcoidosis and Skin Care?
All my travel, education and maintenance for The Mighty Turtle, is covered by me. I seek no sponsors, because when someone writes a check, there is an obligation of loyalty for their support. That’s something I put upon myself, but hey, I like sleeping at night.
Here’s why I don’t seek sponsors: I am free to say what I want. I can support, or not support any non-profit I wish based on my perspective as a patient. I can make jokes that are more adult than PG-13. I did consider becoming a non-profit, but I want all tax deductible donations to go to research and eduction by existing non-profits doing outstanding work. I just do not see a point in the wasted expense of corporate fees for my silly blog. The thing is, I’m not just a blog. I volunteer my time and I attend education events. These things cost money. I am “lucky” enough to have disability benefits from the Veteran’s Administration and access to world class healthcare, but I’d like to attend fundraiser to show those who contribute that people can lead productive lives once symptoms are under control. I am in a remission-esque state. My prognosis is good and I’m feeling good.
I have had a lot of kindness bestowed upon me by people I have never met in person, who send well wishes, prayers and thoughts. I have also met many who do not have access to health care. Good people fighting for disability benefits, and vilified by the media and neighbors for seeking help while fighting for their lives. And once they get help, they are “awarded” a pittance that is gobbled up by medication copays, food and rent. And while they live on these benefits, they endue ridicule from people who think they don’t deserve it. It’s not that there is a majority of douce nozzles who vilify the sick, poor and elderly. There certainly is an abundance of douche nozzles, but it has been my experience that they are the minority. Douche nozzles just yell the loudest, so they are the ones being heard. I want to change that.
The thing about being an activist is, in order to go places and do things, I require money to get to events. Some activists are lucky to be self sufficient. Some work a full time job and do activism in their off time. Some have benefactors or sponsors to help their work. My problem was, I needed funds to go places and do things to further my mission, but I did not feel comfortable asking for donations or working for a non-profit. I am also in no condition to hold down a full time job. If I need to rest, I need to be able to rest and recover. Now, I have a solution.
Yesterday, I became a Brand Ambassador or sales rep for Votre Vu. Everyone has skin, it’s a product line I can stand behind and feel comfortable recommending to others. I get to use my unique set of skills as a manicurist and beauty school drop out. Sure, yoga pants and novelty t-shirts are a staple in my closet, but I know skin care. Working as a Brand Ambassador for Votre Vu will help with expenses to get out, and show the world that high quality health care and the right treatment; not most cost effective treatment, saves lives.
So, in order to get my business going, I have started a Facebook page and Twitter. This way, I can raise awareness without a bunch of “words from my sponsor” mixing my business with my activism. Yes, they will mingle like chocolate and peanut butter at times, but I will do my best not to make it a regular thing.
Today, I am writing about it to grow my business- of course, but I want to make clear my mission: Raising awareness and assisting non-profits without compensation. I don’t want to be compensated by non-profits because it allows me to work with any non-profit I wish. I play nice in “The Sandbox” with everyone who is working for cures and making information freely available. I have the freedom of not competing for funds. Non-profits have to work to get research and education funds from donors. I want to help.
So, I’ve taken this post and rambled about my plans. Thanks for reading. Please “like” and “follow” where applicable. And if you have an occasion for a gift or would like to try some great skin care, please keep my Votre Vu store in mind.
Now, back to our regularly scheduled program…