Scleroderma changed my body, I believed accepting these changes, meant I was accepting defeat. I was scared of what would happen once I believed these changes were happening. What then? But the changes happened no matter what I belived. I … Continue reading
Don’t let the bastards drag you down. New M.D.s are emerging with the belief that opioids should never be prescribed, and instead, other issues need to be addressed. Now, unless they have a cure for scleroderma, they need to be … Continue reading
Scleroderma is a progressive degenerative autoimmune condition. Survival rates are unpredictable. There are many who don’t make it past the five-year mark. I am one of the lucky ones. In October of 1994, I was diagnosed with scleroderma. I did … Continue reading
The Scleroderma gift with purchase includes a free facelift, and fat removal- on our feet. Circulation, pain relief, and proper foot maintenance are key for anyone with feet, not just patients with scleroderma. I have been dying to write a … Continue reading
Scleroderma awareness is not all rubber bracelets and t-shirts. It’s about sharing and teaching others about the hard work being done for patients, providers and caregivers Wednesday is the start of #scleroderma awareness month. There are different types of scleroderma; … Continue reading
Of course I wish scleroderma got the awareness and funds cancer “enjoys”. I’m not angry and I’m going to tell you why. I am also going to offer suggestions to help you educate health care providers and the … Continue reading
Ever notice things in a photograph, you didn’t see while you were posing for the picture? Here is what I have learned about my own behavior and mental health with a “photograph perspective”. Finding the right antidepressant is no … Continue reading
Prologue Like most of my posts, I start with a topic, then go ‘off-road’ with a personal related story and get back on track. I have tried to change that, but this is after all, my blog. Enjoy the … Continue reading
I recently announced my scleroderma may be in remission. According to Merriam Webster, remission (is) a period of time during a serious illness when the patient’s health improves. Remission was my word, not my doctor’s. I have also heard from … Continue reading
Talk to someone. I’m not saying sign up for complicated psycho-analysis. Just talk to someone. You have a lot of things going on, it doesn’t matter what stage of life; something will always be happening. People would tell me, … Continue reading