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Scleroderma and Homeopathic Treatment

This post began as a Facebook post, sharing the Science Babe’s, Slate article about homeopathic medicine. Then, I started talking about my own personal experience  with homeopathic treatment for scleroderma, and here we are. Please enjoy this scenic car ride to my point about my experience using homeopathic medicine. In 1996, I received homeopathic treatment […]

Getting The Full Picture

  Ever notice things in a photograph, you didn’t see while you were posing for the picture?  Here is what I have learned about my own behavior and mental health with a “photograph perspective”. Finding the right antidepressant is no easy task.  So when we find one that does the best job with no side […]

The Best Description of Living with A Chronic Illness You Will Ever Read. Ever.

Okay, maybe not ever.  But how about the best description of living with a chronic illness that you will read for the next fifteen minutes?   Are you healthy?  Have you ever wondered what it is like living with a chronic illness like scleroderma?  Watch the movie Ground Hog Day. It’s no secret I believe Harold Ramis […]

When It Comes to Scleroderma, I’m a Chicken

Or: Please allow me to reintroduce you to my booby.   …Well, it’s not really my booby.  It belongs to everyone. June 24, 2014 I have been keeping this to myself for years and what a better time to talk about my fear of scleroderma during Scleroderma Awareness Month. After my diagnosis, I wanted nothing […]

Scleroderma: Part of The Adventure

I recently announced my scleroderma may be in remission.  According to Merriam Webster,  remission (is)  a period of time during a serious illness when the patient’s health improves. Remission was my word, not my doctor’s.  I have also heard from other patients who will not use remission as well.  The general consensus is, although the […]

Thank You, Queen Latifah. That Was A Perfect Amount of Scleroderma

When it was announced Queen Latifah would be talking about her mom’s diagnosis about scleroderma on her show, I was skeptical.  First, I’m going to tell you why I liked it, hoping she will read it or someone will tell her about it.   Scleroderma does not only devastate the patient.  I have watched my […]

Scleroderma Is Not ‘Just A Skin Condition’

  I recently spoke with a customer service representative at the Social Security Office.  She is tasked with asking questions, and making recommendations for the person seeking help.  So, I did a little research. Today, I read an article by Agency for Healthcare Research and Quality.  They presented 5 steps to take after diagnosis.  As […]

Scleroderma and Me: An Update.

Posted May, 2013.  Update since test; negative for pulmonary hypertension; James of Bounce to a Cure, broka another world record while raising funds for scleroderma research. I left the video up to share with other patients, and let them know that sometimes it’s not pulmonary hypertension. We interrupt this wonderful life for scleroderma. Watch this […]

Why I Am Not Scleroderma

  Yesterday on Facebook, I expressed my disappointment with  I.Am.Scleroderma campaign.   I do like and support the foundation who did it, because so many patients benefit from their work.  I am not happy with that campaign. You might ask, why not send a letter?  Well, I had a thought, expressed it on Facebook and […]

Getting Scleroderma to Trend on Twitter is Not Just About Scleroderma

I am honored that The Pulmonary Hypertention Association has posted what I wrote about this monday’s upcoming Twitter Event: To get #scleroderma to trend world-wide.  There are many overlapping and associated conditions. Please visit their Associated Condition Patient Blog!