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Protecting The Kingdom At All Costs

  We all have fears.  Most people have a fear of things that will eat them.  Some may be afraid of heights.  I have a fear that walks a fine line between a little weird, and crazy.  One of my biggest fears is having to disrobe for a medical exam between waxing,  mistaken for Sasquatch […]

Krav Maga, Yoga, Scleroderma, Sarcoidosis and Feeling Good

I have returned to Krav Maga Classes.  I kept putting it off because I was so busy, I felt it would be too much.  Boy, was I wrong. I went back to my first class two weeks ago and felt energized and empowered after my class.  I am working to make more time for it, […]

A Kid’s Book About Scleroderma

‘My Mom’s Special’ By Andrea Oakland By Karen Vasquez One of many challenges faced by patients with scleroderma: The effect on the children of patients. The story is told in the voice of a young daughter about daily life with her mom, who has scleroderma.  There is no talk of flares or emergency room visits. […]

Scleroderma on the Fly Episode 3: Typing

  If you have seen my hands, I bet you have wondered, “How does she type?” Well, it’s easier than you think.  I have tried voice software, but I end up editing and re-writing. So click here to watch how I type.  It’s much easier than remember, it is much easier than it looks. At […]