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Back To The Beginning, Again. An update about my exercise activity with scleroderma.

This a follow up to a post I wrote in 2012.  I almost started fixing typos, but realized what it really needed,  was an update.  I have sarcoidosis in addition to scleroderma, but sarcoidosis is contained with medication.  There was a great deal of damage done to my body, including my lungs that are scarred, known as […]

It’s Not So Bad, If You Enjoy Walking into a Cactus.

  This part’s a little gross.  If you’re eating, you may want to skip to the next section… Over the weekend, I had a sore on my foot.  It turned out to be a blister.  My original fear was it was one of those lovely calcinosis sores and luckily, it wasn’t.  It did become infected, […]

Paraffin and Scleroderma: Comments on an article about scleroderma.

There is an article about a woman with scleroderma in the United Kingdom all over Facebook and too many social networks to list here. I have a few comments to make. Her methods of skin care work for her and kudos to her for having the time and resources to have a full body paraffin bath […]

Why I Am Not Scleroderma

  Yesterday on Facebook, I expressed my disappointment with  I.Am.Scleroderma campaign.   I do like and support the foundation who did it, because so many patients benefit from their work.  I am not happy with that campaign. You might ask, why not send a letter?  Well, I had a thought, expressed it on Facebook and […]

Surprise! I have toes!

I have been attending Krav Maga consistently and something happened tonight. You know that “Soldier Crawl”?   I had modified it using my forearms and knees.  Today,  I was crawling, and quite naturally, my toes took over for my knees.  It felt natural, and surprised me.  It only happened twice, but it happened.   I […]

What Would Jesus Really Do?

It’s that time of year when Christians reflect on the sacrifice Jesus made for us all.  Honestly, I think many people focus on the torture & death more than his great works.  Look at the symbol:  A emaciated body nailed to two pieces of wood.  That’s not what Jesus was about.  He was crucified.  It […]

Krav Maga, Yoga, Scleroderma, Sarcoidosis and Feeling Good

I have returned to Krav Maga Classes.  I kept putting it off because I was so busy, I felt it would be too much.  Boy, was I wrong. I went back to my first class two weeks ago and felt energized and empowered after my class.  I am working to make more time for it, […]

Pain Management & Scleroderma Part II

Or:  Who Beat Me with a Bag of Oranges? Yesterday, I got all happy in my post about managing my pain, so this morning I woke up hurting.  Not because of Murphy’s Law or I jinxed myself, no, I am not that powerful.  Scleroderma bestows upon those of us who have it a superpower to […]

Pain Management with Scleroderma

      If you missed the Treatment Diaries Chat about Scleroderma on 3/5/2013, we talked briefly about the stigma of pain medication.  (check it out HERE “I don’t want to depend on pain medication.” Sometimes, it’s what we need to do. Stop the pain medication stigma already!  We’ve all said it.   Of course, in […]

Pain, Scleroderma and Activity

This has to be a quick one today, I have an infusion. Last night, I had a great Krav Maga class.  I felt very good, but I forget sometimes, that I maintain a regular level of pain.  We’ve all been at the doctor’s office and asked to rate our pain.  My reply is usually, ” […]