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Scleroderma on the Fly: Episode1

This is a post contains a link to my UTube Channel for my video series: Scleroderma on the Fly. Please click here to watch Episode 1 “What is Scleroderma?”    I mention my secondary diagnosis of Sarcoidosis. To clairify: having more than one autoimmune disease is not uncommon.  To submit questions for future episodes, please […]

Online Support Community, Inspire

Many people benefit from weekly support groups.  Many have to drive hours just to find one near them.  It’s hard to be a patient with one or more hard to pronounce, never been heard of diseases.  It’s very easy to feel isolated. I’m not sure when I discovered Inspire.com but I am sure it is a […]

Spoiler Alert! The First in a Series of Scleroderma Surprises: Raynaud’s Phenomenon.

If you would like to be surprised about some weird things that MIGHT happen to you as a Scleroderma patient this post is not for you.  In addition, if you are  enjoying a meal or snack and are a bit squeamish, I recommend you finish eating before reading.  You have been warned. So, you have […]

My Imagination Helps Me Get Things Done

Day 3 of #HAWMC If I had a super power, what would it be? My super power is my imagination.  I could say my sense of humor, but I’m not always funny, just creative, so I will stick with my imagination. As long as I can remember, I have used my imagination to get me […]