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Scleroderma Awareness Month 2016

Scleroderma awareness is not all rubber bracelets and t-shirts. It’s about sharing and teaching others about the hard work being done for patients, providers and caregivers Wednesday is the start of #scleroderma awareness month. There are different types of scleroderma; limited, morphea and diffuse. I refer to diffuse as “The Fast and The Furious” type, […]

I Hate The Documentary, Project Scleroderma: Beneath The Surface

Prologue Like most of my posts, I start with a topic, then go  ‘off-road’ with a personal related story and get back on track.   I have tried to change that, but this is after all, my blog.  Enjoy the crazy! I hate the documentary called Project Scleroderma: Beneath The Surfce For the longest time, […]

So… What Did The Doctor Say?

I have had many conversations with many doctors about my prognosis and treatment.  There are times these conversations are redundant.  Not in a bad way, it’s because there are times when there are no changes in my symptoms or blood work, which in my case has usually been a good thing.  Why?  Well, it means […]