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June is Scleroderma Awareness Month

  a·ware·ness əˈwernəs/ noun knowledge or perception of a situation or fact. “we need to raise public awareness of the issue” Synonyms: consciousness, recognition, realization concern about and well-informed interest in a particular situation or development. “a growing environmental awareness” – GOOGLE There were 27 diseases that had an awareness month in May. There are 13 in June […]

I’d Rather Have Chlamydia.

  The week of October 5, 2014, I had yet another stay in a veteran’s hospital with another weird diagnosis.   It’s only a matter of time before I recognize  my case in an edition of Scientific American’s Mystery Diagnosis article. Monday was busy, and Tuesday ended with a trip to the ER, presenting with […]

Laughter May Be Best Medicine for Scleroderma

Okay, maybe not the best, but it helps. I started writing this blog in 2009.  If you have been along for the ride, you have seen my writing evolve from sub-par to adequate.  Now, I’m doing stand-up comedy and in no way should be promoting it, but I am telling people where I will be […]

Scleroderma Awareness Month

  Year-round, researchers are gaining ground in the fight against scleroderma.  Doctors who have studied scleroderma and have extensive experience treating patients, are traveling all over the  world to teach doctors, and medical students.  Patients are gathering in support groups to learn about scleroderma, and share ways they cope.  There is much being done, and […]

Scleroderma Awareness Month is Over…

    As a scleroderma patient, I feel this would be my time to list my wishes.  Of course World Scleroderma Awareness Day isn’t Christmas.  But the last hour in the month of Scleroderma Awareness Month is a great time to make requests.   You know how we tell our kids to make a list […]

Yes, It Looks Scary, but it Will Grow Back…

I’ve had a wound /ulcer /hole in my knuckle for a few weeks now.  I had an upswing and it looked like it was going to close, but there is still some icky drainage going on, so I made an appointment to see my doctor to have it looked at today. I have to say, […]

Krav Maga, Yoga, Scleroderma, Sarcoidosis and Feeling Good

I have returned to Krav Maga Classes.  I kept putting it off because I was so busy, I felt it would be too much.  Boy, was I wrong. I went back to my first class two weeks ago and felt energized and empowered after my class.  I am working to make more time for it, […]

Scleroderma Pit Stops

On Christmas Day, a nice red bump appeared on the second knuckle of my right thumb.  Yesterday it swelled some more and today, it’s bigger, the skin is splitting and I’m headed to the VA doctor tomorrow.  Hopefully, there will be a rheumatology clinic or I’m going to have myself a nice wait in the […]

My GI Jump Start: Scleroderma and GI Involvement

I go out of my way to avoid  talking about anything to do with the intestines, their activities and bizarre noises.  I might be the only person on the planet who doesn’t laugh when people make gas jokes.  I am more  willing to drop an “F” bomb like it’s nothing than  say the “F” word […]

My Not Exactly 14 Hour Lipstick Moment

Do you ever see those 14 hour lipstick commercials?  You know, beautiful young women in their twenties doing something professional like rolling out blue prints, dressed in a curve hugging dress, eating pot stickers with chopsticks right out of the take-out box for lunch.  I know what you’re thinking.  You’re thinking, Karen, that’s no commercial- […]