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Surprise! I have toes!

I have been attending Krav Maga consistently and something happened tonight. You know that “Soldier Crawl”?   I had modified it using my forearms and knees.  Today,  I was crawling, and quite naturally, my toes took over for my knees.  It felt natural, and surprised me.  It only happened twice, but it happened.   I […]

The “Bromance” of Vanity & My Lungs

I have pulmonary fibrosis with my scleroderma.  I speak to the parts of my body like they are separate entities to remind them I know they are plotting against me and I will keep throwing a wrench in their maniacal plans to kill me.  I love my lungs for so many reasons, but they are […]

Krav Maga, Yoga, Scleroderma, Sarcoidosis and Feeling Good

I have returned to Krav Maga Classes.  I kept putting it off because I was so busy, I felt it would be too much.  Boy, was I wrong. I went back to my first class two weeks ago and felt energized and empowered after my class.  I am working to make more time for it, […]

Pain, Scleroderma and Activity

This has to be a quick one today, I have an infusion. Last night, I had a great Krav Maga class.  I felt very good, but I forget sometimes, that I maintain a regular level of pain.  We’ve all been at the doctor’s office and asked to rate our pain.  My reply is usually, ” […]

The Mighty Turtle That Could: An Exercise Journal

Well, it’s almost that time of year again.  That magical time after the holidays when it’s all about, “New Year, new you!”  Yes, last year I joined a gym and have not been back since April-ish.  I’m trying something new this year.  Here on my blog, I will be talking abput exercises I have done […]

Day 25 of NHPBM: Advice to Newly Diagnosed Scleroderma Patients.

Day 25 NHPBM Mission: Not Impossible. Because scleroderma is different for everyone, my advice can apply to patients with sarcoidosis or other chronic illnesses.  We may have different diagnoses, but we all share the experience of loss.    I hate saying, “here’s some advice,” but I will write about my experience and what has helped me. […]

My Health Works with Me to Fight Scleroderma and Sarcoidosis.

                                     Day 8, A letter to my health. Dear My Health, Thanks for sticking through all the crazy things going on.  You have been there for me through thick and thin.  I have often heard from doctors, “With […]

A Short Updated Explanation of The Mighty Turtle

Adapt, Overcome, Rinse, Repeat. Not necessarily in that order. Now that The Mighty Turtle has a renovated home, I would like to explain the goals and purpose of this website.  Some of you remember it from back in the day as Scleroderma, Sarcoidosis and Box Wine.  I still have the Facebook Page of the same […]

Online Support Community, Inspire

Many people benefit from weekly support groups.  Many have to drive hours just to find one near them.  It’s hard to be a patient with one or more hard to pronounce, never been heard of diseases.  It’s very easy to feel isolated. I’m not sure when I discovered Inspire.com but I am sure it is a […]

My Imagination Helps Me Get Things Done

Day 3 of #HAWMC If I had a super power, what would it be? My super power is my imagination.  I could say my sense of humor, but I’m not always funny, just creative, so I will stick with my imagination. As long as I can remember, I have used my imagination to get me […]