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Scleroderma and Homeopathic Treatment

This post began as a Facebook post, sharing the Science Babe’s, Slate article about homeopathic medicine. Then, I started talking about my own personal experience  with homeopathic treatment for scleroderma, and here we are. Please enjoy this scenic car ride to my point about my experience using homeopathic medicine. In 1996, I received homeopathic treatment […]

Scleroderma Is A Terrible Name

Scleroderma is an autoimmune disease.  Healthy cells are mistaken for unhealthy ones, and the body attacks itself.  Not only is scleroderma a difficult name to remember, it is also a Greek word that means: hard skin.  Because of the name, people mistake scleroderma for a skin condition. When a doctor told a patient that he […]

June is Scleroderma Awareness Month

  a·ware·ness əˈwernəs/ noun knowledge or perception of a situation or fact. “we need to raise public awareness of the issue” Synonyms: consciousness, recognition, realization concern about and well-informed interest in a particular situation or development. “a growing environmental awareness” – GOOGLE There were 27 diseases that had an awareness month in May. There are 13 in June […]

Scleroderma Awareness Month

  Year-round, researchers are gaining ground in the fight against scleroderma.  Doctors who have studied scleroderma and have extensive experience treating patients, are traveling all over the  world to teach doctors, and medical students.  Patients are gathering in support groups to learn about scleroderma, and share ways they cope.  There is much being done, and […]

Opening Doors With One Hand & Other Benefits of Occupational Therapy for Scleroderma

My son is coming home for the weekend.  I need to do the dishes and get the apartment ready, so of course, I sit down to write.  Why is it I feel so inspired when it;s time to do the dishes.  Oh the the quandary of a writer!  *Places back of hand to forehead and […]

Paraffin and Scleroderma: Comments on an article about scleroderma.

There is an article about a woman with scleroderma in the United Kingdom all over Facebook and too many social networks to list here. I have a few comments to make. Her methods of skin care work for her and kudos to her for having the time and resources to have a full body paraffin bath […]

On To The Mission At Hand…

  In order for occupational therapy to be effective, the patient must be on time, and consistent with appointment attendance. I was not. A trip to my closest VA was a four-hour excursion. An hour one-way, an hour there and an hour back- with no traffic, which would almost never happen- I changed my appointments […]

Exercise, Scleroderma and Krav Maga

  I made a video last night after Krav Maga Class.  Short story long: I injure myself more doing daily activities, than when I exercise or train with the supervision of a professional.   When my range of motion was lost, I had to relearn simple things like sitting on the floor and getting back […]

Why I Am Not Scleroderma

  Yesterday on Facebook, I expressed my disappointment with  I.Am.Scleroderma campaign.   I do like and support the foundation who did it, because so many patients benefit from their work.  I am not happy with that campaign. You might ask, why not send a letter?  Well, I had a thought, expressed it on Facebook and […]

Jedi Wound Care

Jedi Wound Care Last night, there was a “scab” on my middle finger  MCP.  The skin around it was swollen and red.  It was hot to the touch.  I decided to use  non-stick gauze cover it and applied antibiotic ointment. I’ve Been Slimed! Two house later, I took a peak and there was – for […]