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Scleroderma and Homeopathic Treatment

This post began as a Facebook post, sharing the Science Babe’s, Slate article about homeopathic medicine. Then, I started talking about my own personal experience  with homeopathic treatment for scleroderma, and here we are. Please enjoy this scenic car ride to my point about my experience using homeopathic medicine. In 1996, I received homeopathic treatment […]

Scleroderma Is A Terrible Name

Scleroderma is an autoimmune disease.  Healthy cells are mistaken for unhealthy ones, and the body attacks itself.  Not only is scleroderma a difficult name to remember, it is also a Greek word that means: hard skin.  Because of the name, people mistake scleroderma for a skin condition. When a doctor told a patient that he […]

Scleroderma Does Ugly Things to Beautiful People

Yes.  Scleroderma does do ugly things to beautiful people, and me, too. When I began this blog, my intention was to raise awareness of scleroderma.  I’m going on my sixth year with this blog, and awareness is not enough.  The truth is, scleroderma is an ugly disease.  It doesn’t directly affect breasts, and the damage […]

I Hate The Documentary, Project Scleroderma: Beneath The Surface

Prologue Like most of my posts, I start with a topic, then go  ‘off-road’ with a personal related story and get back on track.   I have tried to change that, but this is after all, my blog.  Enjoy the crazy! I hate the documentary called Project Scleroderma: Beneath The Surfce For the longest time, […]

Back To The Beginning, Again. An update about my exercise activity with scleroderma.

This a follow up to a post I wrote in 2012.  I almost started fixing typos, but realized what it really needed,  was an update.  I have sarcoidosis in addition to scleroderma, but sarcoidosis is contained with medication.  There was a great deal of damage done to my body, including my lungs that are scarred, known as […]

Exercise, Scleroderma and Krav Maga

  I made a video last night after Krav Maga Class.  Short story long: I injure myself more doing daily activities, than when I exercise or train with the supervision of a professional.   When my range of motion was lost, I had to relearn simple things like sitting on the floor and getting back […]

Scleroderma Awareness Day

    As a patient, I don’t need a day to make me aware of scleroderma, but I am glad there is a day proclaimed for scleroderma awareness. Today, you will read about patients fighting for their lives and treatment.  I’m going to do something just a little different: I’m going to show you what […]

Scleroderma and Me: An Update.

Posted May, 2013.  Update since test; negative for pulmonary hypertension; James of Bounce to a Cure, broka another world record while raising funds for scleroderma research. I left the video up to share with other patients, and let them know that sometimes it’s not pulmonary hypertension. We interrupt this wonderful life for scleroderma. Watch this […]

Krav Maga, Yoga, Scleroderma, Sarcoidosis and Feeling Good

I have returned to Krav Maga Classes.  I kept putting it off because I was so busy, I felt it would be too much.  Boy, was I wrong. I went back to my first class two weeks ago and felt energized and empowered after my class.  I am working to make more time for it, […]

Day 25 of NHPBM: Advice to Newly Diagnosed Scleroderma Patients.

Day 25 NHPBM Mission: Not Impossible. Because scleroderma is different for everyone, my advice can apply to patients with sarcoidosis or other chronic illnesses.  We may have different diagnoses, but we all share the experience of loss.    I hate saying, “here’s some advice,” but I will write about my experience and what has helped me. […]