Tag Archive


#NHBPM #scleroderma Acceptance adapt Adapting Autoimmune Disease Bob Saget cancer caregivers Chronically Awesome chronic illness chronic pain CREST syndrome depression disability exercise Family hands health healthcare Humor Krav Maga Lungs Meditation Mental Health online communities Parenting patients Pulmonary Fibrosis Pulmonary Hypertension RA Raynaud's Rheumatology sarcoidosis Scleroderma spoonie veteran's healthcare veterans veterans benefits Vets Viagra women women veterans wound care yoga

Divorce: The Best Thing to Happen to My Son’s Development

I had been married nearly eleven years when I told my husband I wanted to separate a while.  We eventually divorced, with all the ugliness that comes with such an event.  Then, things started going well between us, but it didn’t happen overnight, but we definitely have a better relationship now, than when we were […]

People Who Claim to be Pro-Life Confuse Me.

Douchebag: (Doo-sh-bag) n.  One who works to outlaw safe medical procedures for women while insisting vaccines should be optional. Use in a sentence:  Sean Hannity  should visit countries where vaccinations are rare and see what the measles do without treatment or prevention.  Sean Hannity is a Douchebag. The term Pro-Life, is a like a dog […]

All Aboard The Mommy Guilt Train!

  Once upon a time, a mother refused to leave her hospital bed to visit her son in the NICU, and emotionally scarred him for life…  A fairy tale.  A pregnant woman was laying still on her left side, because she was told to do it.  She was told to do so many things to […]

The Best Description of Living with A Chronic Illness You Will Ever Read. Ever.

Okay, maybe not ever.  But how about the best description of living with a chronic illness that you will read for the next fifteen minutes?   Are you healthy?  Have you ever wondered what it is like living with a chronic illness like scleroderma?  Watch the movie Ground Hog Day. It’s no secret I believe Harold Ramis […]

No One Wants Scleroderma

Today was the 12th annual, Stepping Out to Cure Scleroderma walk by the Southern California Chapter of the Scleroderma Foundation.  It was a roaring success.  I am in awe of these amazing people who get together every year not just to walk, but encourage those fighting and remember those we have lost. This year, I […]

On To The Mission At Hand…

  In order for occupational therapy to be effective, the patient must be on time, and consistent with appointment attendance. I was not. A trip to my closest VA was a four-hour excursion. An hour one-way, an hour there and an hour back- with no traffic, which would almost never happen- I changed my appointments […]

The “Bromance” of Vanity & My Lungs

I have pulmonary fibrosis with my scleroderma.  I speak to the parts of my body like they are separate entities to remind them I know they are plotting against me and I will keep throwing a wrench in their maniacal plans to kill me.  I love my lungs for so many reasons, but they are […]

A Kid’s Book About Scleroderma

‘My Mom’s Special’ By Andrea Oakland By Karen Vasquez One of many challenges faced by patients with scleroderma: The effect on the children of patients. The story is told in the voice of a young daughter about daily life with her mom, who has scleroderma.  There is no talk of flares or emergency room visits. […]

A Short Updated Explanation of The Mighty Turtle

Adapt, Overcome, Rinse, Repeat. Not necessarily in that order. Now that The Mighty Turtle has a renovated home, I would like to explain the goals and purpose of this website.  Some of you remember it from back in the day as Scleroderma, Sarcoidosis and Box Wine.  I still have the Facebook Page of the same […]

Bob Saget: He Knows Scleroderma

So, maybe you’re skeptical about hearing what Bob Saget has to say about Scleroderma.  Maybe you’re thinking,  “What could an actor/comedian possibly have to contribute to the scleroderma patient community?” Well, for one, he lost his sister to the disease.  Also, he’s on the Board of Directors at the Scleroderma Research Foundation. Sure, scleroderma is […]