Tag Archive


#NHBPM #scleroderma Acceptance adapt Adapting Autoimmune Disease Bob Saget cancer caregivers Chronically Awesome chronic illness chronic pain CREST syndrome depression disability exercise Family hands health healthcare Humor Krav Maga Lungs Meditation Mental Health online communities Parenting patients Pulmonary Fibrosis Pulmonary Hypertension RA Raynaud's Rheumatology sarcoidosis Scleroderma spoonie veteran's healthcare veterans veterans benefits Vets Viagra women women veterans wound care yoga

On To The Mission At Hand…

  In order for occupational therapy to be effective, the patient must be on time, and consistent with appointment attendance. I was not. A trip to my closest VA was a four-hour excursion. An hour one-way, an hour there and an hour back- with no traffic, which would almost never happen- I changed my appointments […]

Scleroderma, Pulmonary Fibrosis, Sarcoidosis; Need Box Wine.

Well, because of my meds, obviously box wine is out of the question: But a girl can dream. (Sigh).  I set out to make this post about why a patient like me with scleroderma, Sarcoidosis and pulmonary fibrosis would attend a health and fitness convention, then I realized the answer was obvious: Health and fitness […]

My Not Exactly 14 Hour Lipstick Moment

Do you ever see those 14 hour lipstick commercials?  You know, beautiful young women in their twenties doing something professional like rolling out blue prints, dressed in a curve hugging dress, eating pot stickers with chopsticks right out of the take-out box for lunch.  I know what you’re thinking.  You’re thinking, Karen, that’s no commercial- […]

Because I Can

So, after further review of the budget, I had to stop maid service.  It takes e a very long time to clean, but  I decided if I tackle one cleaning job a day, I can stay on top of things.  Yes, it is tough and time consuming, but only if I do it all in […]