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Scleroderma Awareness Month 2016

Scleroderma awareness is not all rubber bracelets and t-shirts. It’s about sharing and teaching others about the hard work being done for patients, providers and caregivers Wednesday is the start of #scleroderma awareness month. There are different types of scleroderma; limited, morphea and diffuse. I refer to diffuse as “The Fast and The Furious” type, […]

Scleroderma Awareness Month

  Year-round, researchers are gaining ground in the fight against scleroderma.  Doctors who have studied scleroderma and have extensive experience treating patients, are traveling all over the  world to teach doctors, and medical students.  Patients are gathering in support groups to learn about scleroderma, and share ways they cope.  There is much being done, and […]

Scleroderma Definition & Resources

Having trouble explaining scleroderma?  Here are some links to help, and an example of a definition I use.  Here is some help to #EndScleroWhat  Medical practitioners, patients and those who love patients, often hear “Sclero-What?”, when trying to educate others. It’s hard to explain scleroderma to someone who has never heard about it using a […]