#NHBPM #scleroderma Acceptance adapt Adapting Autoimmune Disease Bob Saget cancer caregivers Chronically Awesome chronic illness chronic pain CREST syndrome depression disability exercise Family hands health healthcare Humor Krav Maga Lungs Meditation Mental Health online communities Parenting patients Pulmonary Fibrosis Pulmonary Hypertension RA Raynaud's Rheumatology sarcoidosis Scleroderma spoonie veteran's healthcare veterans veterans benefits Vets Viagra women women veterans wound care yoga
I am honored that The Pulmonary Hypertention Association has posted what I wrote about this monday’s upcoming Twitter Event: To get #scleroderma to trend world-wide. There are many overlapping and associated conditions. Please visit their Associated Condition Patient Blog!
I’ve had a wound /ulcer /hole in my knuckle for a few weeks now. I had an upswing and it looked like it was going to close, but there is still some icky drainage going on, so I made an appointment to see my doctor to have it looked at today. I have to say, […]
Well, because of my meds, obviously box wine is out of the question: But a girl can dream. (Sigh). I set out to make this post about why a patient like me with scleroderma, Sarcoidosis and pulmonary fibrosis would attend a health and fitness convention, then I realized the answer was obvious: Health and fitness […]
This is a post contains a link to my UTube Channel for my video series: Scleroderma on the Fly. Please click here to watch Episode 1 “What is Scleroderma?” I mention my secondary diagnosis of Sarcoidosis. To clairify: having more than one autoimmune disease is not uncommon. To submit questions for future episodes, please […]
If you would like to be surprised about some weird things that MIGHT happen to you as a Scleroderma patient this post is not for you. In addition, if you are enjoying a meal or snack and are a bit squeamish, I recommend you finish eating before reading. You have been warned. So, you have […]