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The Best Description of Living with A Chronic Illness You Will Ever Read. Ever.

Okay, maybe not ever.  But how about the best description of living with a chronic illness that you will read for the next fifteen minutes?   Are you healthy?  Have you ever wondered what it is like living with a chronic illness like scleroderma?  Watch the movie Ground Hog Day. It’s no secret I believe Harold Ramis […]

Laughter May Be Best Medicine for Scleroderma

Okay, maybe not the best, but it helps. I started writing this blog in 2009.  If you have been along for the ride, you have seen my writing evolve from sub-par to adequate.  Now, I’m doing stand-up comedy and in no way should be promoting it, but I am telling people where I will be […]

Scleroderma Awareness Month

  Year-round, researchers are gaining ground in the fight against scleroderma.  Doctors who have studied scleroderma and have extensive experience treating patients, are traveling all over the  world to teach doctors, and medical students.  Patients are gathering in support groups to learn about scleroderma, and share ways they cope.  There is much being done, and […]

The VA Scandal is Not News to Veterans

I have written many positive things about the care I have received at  VA hospitals.  There are some amazing people who work there, and listen to patients.  I have received medication that would not have been available to me because of cost,  like Viagra and Remicade.  I would be missing fingers and toes had it […]

Scleroderma: Part of The Adventure

I recently announced my scleroderma may be in remission.  According to Merriam Webster,  remission (is)  a period of time during a serious illness when the patient’s health improves. Remission was my word, not my doctor’s.  I have also heard from other patients who will not use remission as well.  The general consensus is, although the […]

Hope Is Afoot

Every time I think of things being “afoot”, I think of the movie, Bill and Ted’s Excellent Adventure.  I also just started watching House of Cards, and I have compulsion to editorialize what’s going on to an imaginary camera.  Both events are most likely symptoms of too much TV and way too much time alone […]

Harold Ramis Died Today. Here’s Why This Matters To Me.

Early Monday morning, we lost one of the greats.  I grew up in the 80’s.  I spent many days after school and during my summers watching movies by Harold Ramis.  I had a major crush on him and Bill Murray in Stripes.  My dad once told me when he heard I was going in the […]

1995 Called: They Want Their Government Shutdown Back

1995 called.  They want their government shutdown back.     I wasn’t planning on staying up until midnight.  I had Hulu Plus on while getting my list of bills ready to make payments.  I was very excited because I have started working again.  Commission is starting to trickle in, and I could see my goal […]

How To Request Blood Tests Before a Doctor’s Appointment

It’s easier than you think! Patients with chronic illnesses, see specialists for routine appointments four times a year.  Many, like me, are on life extending drugs that can cause damage to kidneys, liver and cause infections, so four times a year becomes a normal routine.   I used to be upset because the blood test […]

Paraffin and Scleroderma: Comments on an article about scleroderma.

There is an article about a woman with scleroderma in the United Kingdom all over Facebook and too many social networks to list here. I have a few comments to make. Her methods of skin care work for her and kudos to her for having the time and resources to have a full body paraffin bath […]