Tag Archive


#NHBPM #scleroderma Acceptance adapt Adapting Autoimmune Disease Bob Saget cancer caregivers Chronically Awesome chronic illness chronic pain CREST syndrome depression disability exercise Family hands health healthcare Humor Krav Maga Lungs Meditation Mental Health online communities Parenting patients Pulmonary Fibrosis Pulmonary Hypertension RA Raynaud's Rheumatology sarcoidosis Scleroderma spoonie veteran's healthcare veterans veterans benefits Vets Viagra women women veterans wound care yoga

Scleroderma on the Fly: Episode1

This is a post contains a link to my UTube Channel for my video series: Scleroderma on the Fly. Please click here to watch Episode 1 “What is Scleroderma?”    I mention my secondary diagnosis of Sarcoidosis. To clairify: having more than one autoimmune disease is not uncommon.  To submit questions for future episodes, please […]

My Life Partner, Scleroderma

In 1992, I considered myself an average 22 year old. I was in the Navy at the time and  my fingers started feeling tingly and would go numb at the slightest drop in temperature. When I reported my symptoms to a doctor, they were dismissed as “female hysteria”.  Then, one “lucky” day I got food […]

My Imagination Helps Me Get Things Done

Day 3 of #HAWMC If I had a super power, what would it be? My super power is my imagination.  I could say my sense of humor, but I’m not always funny, just creative, so I will stick with my imagination. As long as I can remember, I have used my imagination to get me […]