A Short Updated Explanation of The Mighty Turtle

Adapt, Overcome, Rinse, Repeat.

Not necessarily in that order.

Now that The Mighty Turtle has a renovated home, I would like to explain the goals and purpose of this website.  Some of you remember it from back in the day as Scleroderma, Sarcoidosis and Box Wine.  I still have the Facebook Page of the same name, but changed the blog name so it would be easier to remember.  I picked “turtle” because turtles out lived the dinosaurs by adapting.  They moved to the sea, learned that jellyfish are delicious, and know how to cruise The Gulf Stream like a champ on loose bed of kelp.  The only thing anyone remembers from Scleroderma, Sarcoidosis and Box Wine is the “Box Wine” part.  By the way, I stole the “Box Wine” idea after listening to hours of listening to The Stephanie Miller Show Podcast driving to and  doctor’s appointments between LA, Riverside and home.

Overall it is a blog, but there are resources and a store as well as a useful resource about life as a member of the human race living with some chronic illnesses, being a parent and 100% service connected female veteran.

The Mighty Turtle adapts to overcome.

My diagnoses  are Scleroderma, Sarcoidosis, Rheumatoid Arthritis, Depression and complicated damage like pulmonary fibrosis, barrat’s espohagus and Joe my God, the list ends here.

I write to raise awareness and hope to save others time by sharing about how I spun my own wheels.  In addition to written posts, I have a video series called, Scleroderma on the Fly.  This series consists of facts and helpful tips about scleroderma.  Each video after Episode 1 will be two minutes or less and will cover only one topic.  This is to provide a quick go to source thats easy to understand and easy to repeat.  I want those who watch to walk away from each episode knowing the topic.

Feedback is always welcome.  I especially need to know if there is something I talk about that does not translate or you as the reader or viewer need further explanation.  I am my own editor.  Of course I enjoy positive feedback, but critical feedback will only help me become a better messenger.   If it’s the information I give is ever confusing, let me have it!

I support research and fundraising organizations I know about and find credible by sharing their information, donor pages and more. I  am not connected to the organizations I endorse.

I write about current events as well as medical experience. There is more to life than our diagnoses. It took years of therapy for me to realize I was not my Scleroderma. I want to share that message. Though my opinions will be shared, the only thing we need to agree is that diseases like Scleroderma and Sarcoidosis need a cure and patients need better treatment while waiting for one.  (I’m a little tire of waiting.  Did someone just start playing Muzak?)

Thank you for taking the time to read about this website/blog.  I hope you will find it a useful resource and share posts when you feel they are share-worthy.  It doesn’t matter your diagnosis and this page is not just for patients.  It is for patients and those who love and care about them.  Coping is tough as both a patient and loved one.  The greatest way to torture a person is to cause suffering to those they love the most.  Not sure?  Ask a parent.   Diseases have symptoms in common.  Coping is universal because we are in this together and we can help each other by learning from one another.

5 thoughts on “A Short Updated Explanation of The Mighty Turtle

  1. Thank you so much of your kind comment. I hope to keep it going for you. Thank you for visiting, reading and leaving a comment.

  2. I have been trying to do research on trying to find organizations that help with loans or scholoarships or help you go back to school for people that have Chronic Arthritis this past year I was diagnosed with Anklyosing Spondilitis (AS) and I havent ben able to work since December are there any organizations that help people go back to school without having to file for disability at the social security office. I like to paint and sketch so I have been thinking about art school I am really fascinated with tattoos so I think becoming a tattoo artist would be cool but without schooling its really impossible to do anything there are so many gifted artists in Dallas.

  3. Oh and it has been kind of hard since I lost my job considering that I have just turned 24 a couple of months ago but at least Iam walking again without a cane or crutches I thank God for that hopefully one day I can run again cuz I miss working out and running and I would like to get back into martial arts again but Iam thankful for one thing though since I have been thru this I appreciate life alot more now and always consider you never know what someone else is going thru and that there is always someone out there that has it way worse than you so gotta always keep your head up.

  4. Thank you Danny for leaving your comment. I am so thankful for it because you have inspired me to write a post. Some people have tried to use that to comfort me when I feel depressed and it made me feel that my feelings of loss were invalid and so, I must disagree with you. I disagree because no one’s condition is any less serious or debilitating because it is not what someone else would define as “worse”. I am not saying we all have a right to feel sorry for ourselves, but I am saying we should never judge someone else’s condition as worse to make us feel better about our own condition. Yes, things may be bad. They get better or they get worse. When we say, “Well, it’s not that bad.”, we can diminish how serious our condition may be and ignore symptoms simply because they are not as bad as someone else’s. I see your point and I am glad for your comment. I am of the opinion that by diminishing our condition because we are not as bad off as others is an insult to others and to ourselves. It’s ok to acknowledge that things suck, as long as we find a way to adapt. It’s part of accepting our losses caused by our disability or poor health. Check out “The Five Stages of Grief.” It addresses grief and loss. Even though our chronic illnesses may not be in a fatal state, we still experience loss. I will explain more in a future post. Thank you for inspiring me. ~Karen

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