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Scleroderma Awareness Month is Over…

    As a scleroderma patient, I feel this would be my time to list my wishes.  Of course World Scleroderma Awareness Day isn’t Christmas.  But the last hour in the month of Scleroderma Awareness Month is a great time to make requests.   You know how we tell our kids to make a list […]

Scleroderma and Me: An Update.

Posted May, 2013.  Update since test; negative for pulmonary hypertension; James of Bounce to a Cure, broka another world record while raising funds for scleroderma research. I left the video up to share with other patients, and let them know that sometimes it’s not pulmonary hypertension. We interrupt this wonderful life for scleroderma. Watch this […]

A Kid’s Book About Scleroderma

‘My Mom’s Special’ By Andrea Oakland By Karen Vasquez One of many challenges faced by patients with scleroderma: The effect on the children of patients. The story is told in the voice of a young daughter about daily life with her mom, who has scleroderma.  There is no talk of flares or emergency room visits. […]

WEGO Health: Miss Congeniality & Hilarious Health Activist

Day 30 Chris Dean Virgo. Pocket Duck Expert. WEGO Heath Activist. I heard about Chris Dean’s blog, Life Your Way! in June of 2012.  Since that time, I  try to read her blog every day.  It is truly where “Health and Humor Meet in a Head-on Collision”.  I am supporting her nomination as Miss Congeniality […]

My Health Works with Me to Fight Scleroderma and Sarcoidosis.

                                     Day 8, A letter to my health. Dear My Health, Thanks for sticking through all the crazy things going on.  You have been there for me through thick and thin.  I have often heard from doctors, “With […]

So… What Did The Doctor Say?

I have had many conversations with many doctors about my prognosis and treatment.  There are times these conversations are redundant.  Not in a bad way, it’s because there are times when there are no changes in my symptoms or blood work, which in my case has usually been a good thing.  Why?  Well, it means […]

A Community Dances In The Rain To Fight Hodgkin’s Lymphoma

My sister Andrea is part Mary Poppins,  part MacGyver with Moves Like Jaggar.  She is organized, energized, a true Virgo and I am proud to call her my little sister.  I’m not featuring Team Joey in my first Fundraiser Spotlight because my sister Andrea has incriminating photos: I’m featuring Team Joey because my sister, Andrea Brookshore, is […]

A Scleroderma Patient Walks Into A Doctor’s Office… And The Doctor Has Scleroderma

Edited 8/31/2012  I felt that my original post was a bit hard on the doctor.  I don’t mention him by name, but above all he is human and a fellow patient.  This experience is not just about me, but about me coping with the world around me.  Sometimes I do so in a way that seems […]

Bob Saget: He Knows Scleroderma

So, maybe you’re skeptical about hearing what Bob Saget has to say about Scleroderma.  Maybe you’re thinking,  “What could an actor/comedian possibly have to contribute to the scleroderma patient community?” Well, for one, he lost his sister to the disease.  Also, he’s on the Board of Directors at the Scleroderma Research Foundation. Sure, scleroderma is […]