Tag Archive

#NHBPM #scleroderma Acceptance adapt Adapting Autoimmune Disease Bob Saget cancer caregivers Chronically Awesome chronic illness chronic pain CREST syndrome depression disability exercise Family hands health healthcare Humor Krav Maga Lungs Meditation Mental Health online communities Parenting patients Pulmonary Fibrosis Pulmonary Hypertension RA Raynaud's Rheumatology sarcoidosis Scleroderma spoonie veteran's healthcare veterans veterans benefits Vets Viagra women women veterans wound care yoga

My Health Works with Me to Fight Scleroderma and Sarcoidosis.

                                     Day 8, A letter to my health. Dear My Health, Thanks for sticking through all the crazy things going on.  You have been there for me through thick and thin.  I have often heard from doctors, “With […]

Why I Choose to Leave Public Nervous Breakdowns to The Kardashians

How do I decide what to share? 3. Will anyone else but me care?  No= Pick new topic 2. Do I have valid research to back information I talk about? No= Pick new topic 1.  Should I post about an ongoing unresolved  crisis?  No= Pick new topic.   Solve crisis privately, post when there is […]

The Purpose-Free Driven Day

This morning, I felt unusually fatigued.  I had no energy.  My mind said go, my body said no.  So, I pondered the cause of today’s  fatigue with some questions. Were my lungs exchanging oxygen properly?  I breathe easier after taking viagra: did I take it? Then there’s  Pulmonary Fibrosis because of scleroderma and/or sarcoidosis: because […]

A Tremor In The Force

On August 7, 2012, there was a great tremor in the force and we lost Lexie,  aka @OneBloggerGirl, a fellow scleroderma patient.  She was 28 as of her blog info. I, like many of my friends on Twitter, only new her online.  I really have no words right now except that my thoughts and wishes […]