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Scleroderma: Part of The Adventure

I recently announced my scleroderma may be in remission.  According to Merriam Webster,  remission (is)  a period of time during a serious illness when the patient’s health improves. Remission was my word, not my doctor’s.  I have also heard from other patients who will not use remission as well.  The general consensus is, although the […]

I Don’t Have Cancer, But A of The Side Effects of My Meds May Cause Cancer.

Last week, I met the  Chief of Rheumatology at Long Beach Veteran’s Hospital..  She seemed cool.  She had some great ideas.  One of them was changing my medication from Remicade to Humira.  That’s a great idea, however, not one I’m on board without some research.   Remicade has some nasty side effects; one of them […]

What’s The Point?

Will it really make a difference if we get scleroderma to trend June 3? Let’s start with more questions.  Because isn’t the journey what it’s all about?  No? Well how about this:  It’s what Yoda would do. Don’t worry, Young Jedi.  As always, there is an option to skip to the end.  What is most […]

What Would Jesus Really Do?

It’s that time of year when Christians reflect on the sacrifice Jesus made for us all.  Honestly, I think many people focus on the torture & death more than his great works.  Look at the symbol:  A emaciated body nailed to two pieces of wood.  That’s not what Jesus was about.  He was crucified.  It […]

Dancing in the Rain, by Blogger and Artist, Chris Dean

Do you know my friend Chris?  She’s an amazing artists.  Today, please enjoy and share her work.  Friday, she whipped up this amazing picture for Team Joey.  This work of art deserves its own post to show Chris’ work and Joey’s page.  Please follow the links below to learn more! Team Joey, Facebook Chris Dean […]

A Community Dances In The Rain To Fight Hodgkin’s Lymphoma

My sister Andrea is part Mary Poppins,  part MacGyver with Moves Like Jaggar.  She is organized, energized, a true Virgo and I am proud to call her my little sister.  I’m not featuring Team Joey in my first Fundraiser Spotlight because my sister Andrea has incriminating photos: I’m featuring Team Joey because my sister, Andrea Brookshore, is […]

Online Support Community, Inspire

Many people benefit from weekly support groups.  Many have to drive hours just to find one near them.  It’s hard to be a patient with one or more hard to pronounce, never been heard of diseases.  It’s very easy to feel isolated. I’m not sure when I discovered Inspire.com but I am sure it is a […]