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Brave Is Beautiful

Last night I had the honor of attending the launch party for Valor Hairspray at Pearls Rooftop on Sunset. Here, is Gina Elise, founder of Pin-Ups For Vets with Beauty & Pin-Ups founder. Gina’s photo is on the bottle and 10% of all sales of Valor, go to Pin-Ups For Vets, a non-profit organization supporting […]

I’m Not Here to Inspire You

Disability and illness are cruel, but having them does not make an individual special. This may not be a popular opinion, but it is mine. Since I have both disabilities and chronic illnesses, I will take the floor. I have been called brave, a warrior, or described as “suffering”. I have had great difficulty helping […]

Scleroderma and Homeopathic Treatment

This post began as a Facebook post, sharing the Science Babe’s, Slate article about homeopathic medicine. Then, I started talking about my own personal experience  with homeopathic treatment for scleroderma, and here we are. Please enjoy this scenic car ride to my point about my experience using homeopathic medicine. In 1996, I received homeopathic treatment […]

Why I’m Not Angry Cancer Gets More Attention Than Scleroderma

    Of course I wish scleroderma got the awareness and funds cancer “enjoys”. I’m not angry and I’m going to tell you why.  I am also going to offer suggestions to help you educate health care providers and the general public by recognition and comparison. Why is cancer so infuriating to patients with rare […]

It’s Important Not to Live Like You’re Dying

    And yes, even when you feel like you are dying.   Scleroderma is a progressive, degenerative and fatal illness; but the fatality part can take decades.  When I was first diagnosed with scleroderma in 1994, I was expected to rest and wait and see if I lived through it.  I was discouraged by […]

Getting The Full Picture

  Ever notice things in a photograph, you didn’t see while you were posing for the picture?  Here is what I have learned about my own behavior and mental health with a “photograph perspective”. Finding the right antidepressant is no easy task.  So when we find one that does the best job with no side […]

Scleroderma Is A Terrible Name

Scleroderma is an autoimmune disease.  Healthy cells are mistaken for unhealthy ones, and the body attacks itself.  Not only is scleroderma a difficult name to remember, it is also a Greek word that means: hard skin.  Because of the name, people mistake scleroderma for a skin condition. When a doctor told a patient that he […]

Living With Scleroderma & Sarcoidosis Makes Me Not Dead.

      As a scleroderma patient, there are things I cannot control, but as a strong-willed control freak, I happily manage to control a thing or three.   Recently, Facebook banned a photo of a woman with scleroderma, next to another scleroderma patient who did not look like she had scleroderma.  She did it […]

World Scleroderma Day 2015

Note:  If you haven’t seen the Wayne Brady episode of Chappelle’s Show, you won’t get the reference below.  (Watch Now)   Every year, tens of thousands of patients around the world, get together on social media to inform the masses of scleroderma.  What is scleroderma?  Scleroderma is a progressive, degenerative disease like Lupus, rheumatoid arthritis […]

How I Don’t Look Sick

Well, at least I think I don’t look sick, or like I have scleroderma.   I read my dear friend Chris Dean’s  blog this morning and I was so excited to read she was trying out products. I told her so, and she encouraged me to post about my make-up tips.   In the past […]